Cochrane evidence now fully available in Switzerland
New Evidence for Everyday series for patients coming soon. Looking ahead with Evidently Cochrane
Have you heard of the EQUATOR Network? Enhancing the QUAlity and Transparency Of health Research
The Equator Network asks: Whether you have or you haven't, please fill in a very short online form accessible via our website. We would like to involve patients, carers and the public in our work in the future and would like to know the level of interest and awareness of our work before we start.
http://www.equator-network.org/2016/01/06/have-we-helped-you/
What do pharmaceutical industry professionals in Europe believe about involving patients and the public in research and development of medicines?
A qualitative interview study (Open Access) http://bmjopen.bmj.com/content/6/1/e008928.full.pdf
The Outcome of My Clinical Trial Is a Mystery
“As a kid, I enrolled in a study whose results were never published—meaning I'll live the rest of my life with a heart implant, but may never know how well it actually works.”
http://www.theatlantic.com/health/archive/2016/01/clinical-trial-unpublished-results/423540/
Paul Glasziou and Iain Chalmers: Is 85% of health research really “wasted”?
Living With Cancer: A Broken Covenant With Patients
http://well.blogs.nytimes.com/2016/01/15/living-with-cancer-a-broken-covenant-with-patients/?_r=0
UK Patient and Public Involvement Opportunity
Oxford Biomedical Research Centre writes: “Do you have a rare inherited medical condition, or have you been diagnosed with cancer, or are you a relative of someone who has? Are you able to put yourself in other people’s shoes, and see their point of view? Can you spare the time to meet twice a year and help to review documents by email?
If so we would like to hear from you! We are holding an information evening for anyone interested in joining this group in early March 2016. Capacity is limited, apply early!”
Contact them for more information at Oxford.GeneticsPPI@ouh.nhs.uk and see the attached flyer for more information.
Consumers – sign up for Task Exchange
Task Exchange is a platform that connects people who need help with their Cochrane reviews with people who have the time and expertise to help. This includes consumers. Find out more here: https://taskexchange.cochrane.org/
Do you work in Emergency Medicine in the UK? Have you visited A&E?
Help influence the future of Emergency Medicine research
http://www.rcem.ac.uk/Shop-Floor/Research/Research%20Priority%20Setting%20Partnership%20%28James%20Lind%20Alliance%29/
James Lind Alliance Non-alcohol related liver and gallbladder Partnership (JLA-NARLIP) Survey
Do you have experience of Liver or Gallbladder disease? Do you work with patients in this area? Please take this brief questionnaire and influence the future of research.
https://docs.google.com/forms/d/18z3ilNQtVtWLfbTfggpS3WK11emzOh5hBBNfLhQg8yU/viewform?c=0&w=1