Blog

  • Heather Goodare first became interested in medical research as a participant in the discredited 1990 study of women with breast cancer who attended the Bristol Cancer Help Centre for complementary care.  She was the first patient representative on the Editorial Board of the BMJ, and has served Cochrane as a 'consumer' for many years, also...
    February 23 2012
  • I joined The Cochrane Collaboration in 1997, when the Pregnancy and Childbirth Group (PCG) invited me to help them involve consumers in their work. At the time, I was an antenatal teacher with the UK National Childbirth Trust (NCT) and I was on the NCT Research and Information Group because I had a scientific background. I was interested in PCG...
    February 21 2012
  • Why did you join CCNet?I have been involved in the Cochrane Collaboration (CC) since 1999, when my eldest daughter was diagnosed with multiple sclerosis (MS). I joined the MS group, and from the beginning I have taken an active role, both as Editor and consumer representative.Anyway, I have felt myself essentially a consumer, so, since then, I...
    January 25 2012
  • I came to Cochrane in 1999 as a Canadian consumer.  While attending a breast cancer symposium in Brussels, Belgium early that same year, I learned of Cochrane and the consumer presence within Cochrane through Hilda Bastian.  My first Colloquium experience was in Rome.  Lots of consumers from around the world participated in the...
    January 25 2012
  • Only recently launched, the Cochrane Summaries website (summaries.cochrane.org) has received global attention, which reached a pinnacle when The Cochrane Collaboration was awarded the runner-up trophy for the best public website by the Plain English Campaign, which has been “fighting for crystal-clear communication since 1979.”David Tovey, the...
    January 11 2012
  • It was truly an  honor to attend the XIX Cochrane Colloquium!  Indeed, arriving in Madrid October 17th after an overnight flight from Canada was incredibly exciting.  Prior to the journey I had registered in workshops that corresponded with my requirements for expanding knowledge and developing new skills for the benefit of...
    November 30 2011
  • I found that there were four ways that the Madrid Colloquium was helpful. The first was the programs to benefit consumers.  The workshops specifically to help consumers understand the scientific information and the workshop to know how to read and write plain language summaries fill a necessary need in having new consumer reviewers be well...
    November 21 2011
  • The reality is that many who read Cochrane reviews (including clinicians, policymakers, medical reporters) do not read beyond the plain language summary and the abstract. Inclusion of the following information in the abstract and PLS of Cochrane drug and device reviews is key when relevant:1) State when all or most of included trials...
    November 17 2011
  • Sometimes even the best laid plans can go awry. The Colloquium can be overwhelming in a normal year and Madrid was approaching with more people and longer days than usual. It helps to recognize some friendly faces in the vast hallways, so CCNet planned a welcome dinner on the evening of their arrival. As consumers descended on Madrid, our luck ran...
    October 22 2011
  • EngagementThe Cochrane Dementia and Cognitive improvement Review Group is running a year-long public engagement project, funded by the National Institute of Health Research. The grant was awarded to test the innovative idea of recruiting carers (and former carers) of people with dementia to volunteer with our group, helping us update and...
    October 18 2011

Pages